Last Updated – March 30, 2015
BioNews Services is a digital media firm focused on building the web’s only network of news-based chronic disease education platforms. We currently operate over thirty (30) disease-specific news websites that provide patients, caregivers, physicians and industry professionals access to comprehensive , disease-specific news coverage, and we are continuing to grow.
At BioNews Services, we recognize that those living with a chronic disease, as well as their friends and families, search the web often looking for the latest news and reports on novel treatments, next-generation therapies and other business and research-related breakthroughs that could impact their quality of life. We are not a “covered entity” under the Health insurance Portability and Accountability Act of 1996 and its rules (“HIPAA”), and do not provide medical or health advice. What we are is passionate about providing patients and their caregivers access to the most up to date news about their respective conditions, and also providing our industry clients access to very specialized demographics within difficult to reach patient populations. In this way, we bring patients and professionals together through clinical trial recruiting, product advertising, patient surveys and patient education.
Types and Uses of Collected Information.
Many of our services do not require any form of registration or identification. You can freely visit many of our web pages without telling us who you are. However, some other of our services, such as inquiring about participation in specific clinical trials, do require that you provide your personal details, including information about your medical history, demographics, and the like. This allows us to process and/or send you information that you request about specific clinical trials. When you first register for a BioNews Services program or service, we ask for your consent to collect your personal information. At that time, we also explain what you are registering to receive under that program or service, and how we plan to use your personal information.
We may collect two types of information about you, Personally Identifiable Information and Non-Personally Identifiable Information:
- Personally Identifiable Information or “PII”. When you engage create an account, send us feedback, or otherwise participate in our services, we may ask you to provide certain information about yourself such as your first and last name, your mailing address, your age, birth date, gender, e-mail address, telephone number. This is PII. If you elect to engage in certain activities such as inquiring about a specific investigational clinical research trial, however, included in the PII we ask you to provide will be a request for information about your medical history. This may constitute “protected health information” or “PHI” under HIPAA, and we will protect its use and disclosure as applicable under HIPAA. For some of these activities or services, providing the requested PII or PHI is mandatory, and if you do not provide the requested information, you will not be able to participate. Depending on the activity, we may not re-ask you for your PII or PHI if it is already stored with us.
- Non-Personally Identifiable Information. Non-Personally Identifiable Information is information that does not identify a specific person. What it is and how we use it are discussed more fully below.
- Consent to Provide Your Personal Information to BioNews Services. As noted above, we obtain your consent to collect your PII when you inquire about an investigational clinical research program or service. We also offer you the option of discontinuing your consent (“opting out” or “unsubscribing”) if you later decide that you no longer want to participate in that program or receive additional information from us. If we wish to use this information for purposes incompatible from those for which the data was initially collected, we will offer an effective way to opt out of the secondary use.
Clinical Trials. We provide research notices as an informational service to you, both by making you aware of clinical studies that are available for participation, and by maintaining a data bank/registry of others like you who register with us in order solicit information and participants for future clinical trials. For clinical trial opportunities that you learn about through us, we will only share your PII with the trial site near you once you have consented to be contacted and authorized us to share that information. Your PHI in the registry may be utilized by our qualified professional and industry clients to develop inclusion criteria for participation, promote participants’ safety and assist researchers in learning the information they need.
Authorized Third Party Service Providers. BioNews Services may provide products and services through third parties. These “Third Party Service Providers” perform functions on our or your behalf. You or we may share your PII with such Third Party Service Providers to fulfill orders, move data in or out of BioNews Services, analyze data, operate the BioNews Services services, troubleshoot and provide customer service. We may also provide personal information to individuals and companies with which we have business relationships and may share your information with Third Party Service Providers to accomplish our administrative tasks. The use of your PII by such parties is governed by their privacy policies and is not subject to our control. However, in the event that the third party is a covered entity under HIPAA and we have contracted to be that entity’s “business associate,” regarding the use and disclosure of PHI – for example, for specific clinical trials – we will comply with all applicable HIPAA privacy and security requirements.
- Referrals. You may choose to invite friends to join or read BioNews Services by sending invitation emails via an invite feature. BioNews Services stores the email addresses you provide so that the respondents may be sent reminders of the invitations. BioNews Services does not sell these email addresses or use them to send any other communication besides invitations and invitation reminders. Recipients of invitations may contact BioNews Services to request removal of their information from our database.
- Non-Personally Identifiable Information. This type of information may include things like the Uniform Resource Locator (“URL”) of the website you visited before coming to the BioNews Services website , or otherwise participating in this website, the URL of the website you visit after leaving our website, the type of browser you are using, your Internet Protocol (“IP”) address, or general and/or aggregated location data that does not constitute PII. We and/or our authorized third party service providers may automatically collect this information when you visit or use this website through the use of electronic tools like Cookies and Web beacons or Pixel tags, as described below.
We may use this information to troubleshoot, administer the BioNews Services service, analyze trends, gather demographic information, comply with applicable law, and cooperate with law enforcement activities.
We may disclose or share Non-Personally Identifiable Information with Third Party Service Providers and the general public. For example, we may share aggregated demographic information (which does not include any PII) or use Third Party Service Providers to track and analyze Non-Personally Identifiable usage and volume statistical information from our users to administer our service. We may also publish this aggregated information for promotional purposes. Such data is collected on our behalf, and is owned and used by us.
- Updating Information. If you are enrolled in the BioNews Services service, you may change any of your applicable PII or PHI by logging into your account and accessing the user profile page. We encourage you to promptly update your PII or PHI if it changes, as out-of-date personal information may negatively affect the quality of your BioNews Services experience.
- Choices on Collection/Use of Information. You can always choose not to provide certain information, although as explained above, a certain level of information may be required to engage and participate in some BioNews Services services. If you are enrolled, you cannot opt-out of Administrative Emails. “Administrative Emails” relate to your activity on the BioNews Services Service, and include but are not limited to emails regarding your account, requests or inquiries. If you do not want to receive promotional emails from us, you may elect to opt-out of receiving promotional emails at any time after registering by e-mailing us at [email protected] or by hitting the “unsubscribe” button at the bottom of any of our e-mails.
- Security of Information. You can access your PII or PHI via this website with your password and username. This password is encrypted. We advise against sharing your password with anyone. If you access your account via a third-party site or service, you may have additional or different sign-in protections via that third-party site or service. You need to prevent unauthorized access to your account and PII or PHI by selecting and protecting your password and/or other sign-in mechanism appropriately, and limiting access to your computer, browser, or mobile device by signing off after you have finished accessing your account. Unauthorized entry or use, hardware or software failure, and other factors, may compromise the security of user information at any time. In the event that we believe that the security of your information may have been compromised, we may seek to notify you of that development. In addition, your PII or PHI resides on a secure server that only selected personnel and contractors have access to. We may encrypt certain sensitive information using Secure Socket Layer (SSL) technology to ensure that your PII or PHI is safe as it is transmitted to us. However, no data transmission can be guaranteed to be 100% secure. As a result, while we employ commercially reasonable security measures to protect data and seek to partner with companies that do the same, we cannot guarantee the security of any information transmitted to or from or via the BioNews Services Service, and we are not responsible for the actions of any third parties that may receive any such information.
- Data Tracking
Other Tracking Devices. We may use other industry standard technologies like pixel tags and web beacons to track your use of the website, or we may allow our Third Party Service Providers to use these devices on our behalf. When you access the BioNews Services website or open or click an email, pixel tags and web beacons generate a Non-Personally Identifiable notice of that action. Pixel tags allow us to measure and improve our understanding of visitor traffic and behavior on the website , as well as give us a way to measure our promotions and performance. We may also utilize pixel tags and web beacons provided by our marketing partners for the same purposes.
- Email Choice/Opt-out. We will make commercially reasonable efforts to implement your email opt-out requests promptly, but you may still receive communications from us for up to ten business days as we process your request.
- Privacy Settings. As a user, you may have limited access to privacy settings. These settings help hide information you wish to share with other users and/or the public. It is up to you to select the appropriate privacy settings. If you do not agree with the available privacy settings, we request that you please stop using the BioNews Services website.
- Public Areas. We may provide areas on the BioNews Services website where you can publicly post information about yourself or can communicate with others such as on forums. This information may be accessible by other users and companies and may appear on other websites or web searches, and therefore this information could be read, collected, and used by others. We have no control over who reads your postings or what other users may do with the information you voluntarily post, so please use caution when posting any content or providing anything that could be deemed personal information.
- Notice of Privacy Rights to California Residents. California law requires that we provide you with a summary of your privacy rights under the California Online Privacy Protection Act (“COPPA”) and the California Business and Professions Code. California law requires us to inform you, at your request, (1) the categories of PII we collect and what third parties we share that information with; (2) the names and addresses of those third parties; and (3) examples of the products marketed by those companies. COPPA further requires us to allow you to control who you do not want us to share that information with. To obtain this information, please send a request by email or physical mail to the address found below. When contacting us, please indicate your name, address, email address, and what PII you do not want us to share with our marketing partners. The request should be sent to the attention of our legal department, and labeled “California Customer Choice Notice.” Please allow 30 days for a response. Also, please note that there is no charge for controlling the sharing of your PII or requesting this notice.
- Children. The BioNews Services website is not directed to people under the age of 13. If you become aware that your child has provided us with personal information without your consent, please contact us at [email protected]om